Sunday, May 29, 2011
We also didn't have a car at the beginning of this admission. Thanks to some amazing friends, we were still able to get there on time. Our car is back up and running and hopefully won't give us anymore issues anytime soon. Perfect timing, huh?!
Carter has been doing awesome. He has had so much energy and is just full of life. The nurses and doctors are all very impressed with his energy level. We are so proud of him and never cease to be amazed by him.
And I have to say THANK YOU again for all the help. The cleaning, the meals, the borrowed car, the good friends with listening ears, and everything else. We are so grateful to have such wonderful friends and family. Thank you, thank you!!
Friday, May 27, 2011
Carter is officially done with his last dose of High Dose Methotrexate! He finished it at 5:30 today and now we just have to wait for him to clear it from his system and we'll be back home! Everything is going well so far. Yesterday they did an ecocardiogram to check out his heart. One of the medicines that he'll get next round can cause heart damage so they want to make sure everything looks good and healthy first. And his little brother got to spend the day at the hospital with us today. They had a blast together. Carter's numbers are looking really good right now. So good that (barring any unforeseen issues) we won't have to go back to the hospital for almost 3 weeks! Wow, I don't know what we'll do with all that time. His next visit will be the beginning of "Delayed Intensification". It will be 2 months long and very intense. I, for one, am not looking forward to it. Anyways, I'll let you know when we're all back home together!
Monday, May 16, 2011
Friday, May 13, 2011
Wednesday morning we came to the clinic and were then checked into the inpatient unit for the 3rd dose of High Dose Methotrexate. Carter had a 10:00 sedation scheduled for a lumbar puncture and chemo in his spinal fluid. BUT, since he ate two tiny grape nuts (yes, that gross cereal. Two teensy little nuggets) they couldn't do the sedation. The next available time wasn't until 4:00 that afternoon. We had 10 minutes before his 6 hour cut-off so he scarfed down a bowl of cereal and the fasting began. It wasn't nearly as bad as I feared it would be. He stayed busy all day, playing with play-do, playing in the rice box, riding the tricycle, etc. He only asked for something to eat a few times. They stared him on IV fluids right away so by the time 4:00 came around, he'd already met his urine parameters to begin the HDM. We went in for the sedation, which went perfectly (he always takes more medicine than an average child of his size since he fights going to sleep) and I ordered food for him so it would be there when he woke up. He immediately started eating his noodles with butter (his new favorite meal) and the fork just wasn't fast enough so he was shoving it in by the handful. The nurse walked by and nearly passed out from laughing. In between noodle bits, he would take a couple licks of his sucker or a bite of broccoli. He ate almost the whole plate full of food. It was impressive. He then received Vincristine and then the HDM started. 6:00 last night is when that was done infusing and his level was at 82. This morning at 6:00 it had dropped to 1.91. They started the "rescue medicine" at noon and drew more blood. It's now down to 1.05 which is higher at this point than the previous two times we've been here. The nurse just increased the fluids so hopefully that will help to flush it out of his system. We're still thinking and hoping that we'll be out of here sometime tomorrow.
We're more than half-way through this round! Only one more scheduled admission left.
Sunday, May 1, 2011
Carter is back home! He did really great with the medicine again. It all went really smooth, just like last time. And now we have another nice long break. As bad as that 8 day stay in the hospital was last month, it sure makes us appreciate these quick expected stays. We know how much worse it could be and we're just happy it's going so well. He feels fine the whole time and has more energy than we can keep up with. He is truly amazing.